Huntington's Disease Association of Ireland (HDAI) provides consultation, information and individualised support to those diagnosed with Huntington's Disease (HD), their families and their health care team.
Information on HD
Understanding Behaviour, Caregivers Guide and Physicians Guide are now updated, contact the office if you require an information pack to be sent out.
Annual Respite Weekend
Our Annual Respite weekend takes place in Cuisie, Co Roscommon in conjunction with a Members Meeting and Annual General Meeting. See Q2 10 newsletter for a report.
If you are affected by HD you are welcome to avail of our services. Become a member and receive publications and information regularly
If you would like to help Create Awareness or take part in a Fundraising Event on behalf of HDAI we would be happy to hear from you.
HD Cafe Event at Bloomfield Health Services - Dublin 7pm April 5th, 2017
HD Papal Audience May 18th Vatican, Rome
Pope Francis will address thousands of people impacted by HD from around the world. See http://hddennomore.com
HD Seminar March 4th 2017
Speakers presentations available shortly.
Enroll -HD www.enroll-hd.org Dr Niall Pender and Beaumont Hospital have established an Enroll-HD site at Beaumont. This is a worldwide study for HD family members. For more info watch the Information videos below and contact the study site email : firstname.lastname@example.org
Enroll Study Nationwide 15/6/15 (8 mins in)
Support People with Huntington's Disease
HDAI Hoodies - click on Easy Pay button above to order
HD TV Features:
RTE TV's Morning Edition TV3 Ireland Am
Check out HDAI's Facebook Page
Neurological Alliance of Ireland (NAI)- Promoting Awareness
NAI's campaign We Need Our Heads Examined calls on government to tackle critical lack of rehabilitation services for people with neurological conditions.
Crisis in neurology services highlighted Report on National Survey of Neurology Services 2015
HD features in video : Ireland Gets a Red Card for Neurological Care
Dublin February 4th* Change of Venue, Longford February 18th, Cork March 18th, Limerick April 8th, Contact HDAI for venue and info: 1800 393939
RESPITE Weekend and AGM June 9-11th 2017 Cuisle Roscommon
Donate or Sponsor a Fundraiser
Click on the MyCharity.ie link on right to donate or sponsor a HD Fundraiser
Visit to Aras an Uachtarain
"While I am aware of the deep sorrow and pain this disease brings to each affected family, I want to commend you for the courage and perseverance many of you espouse".
Staying active delays HD
Melbourne researchers have have found that leading a more active lifestyle can delay the onset of symptoms.