HDAI together with Irish filmmakers Amanda Spencer and Brian Moore are hosting a special screening of Dancing At The Vatican on Thursday May 23rd at the Lighthouse Cinema, Dublin. This powerful, short documentary film follows a brave few South American families, who despite the poverty and isolation of their lives, journey to Rome to call for an end to the fear and stigma surrounding Huntington’s disease; that it no longer be a hidden disease. The film comes at a time when the need for HD families to participate in research has never been more important.
Following the screening, we have on our Q&A expert panel: Dr. Ed Wild Associate Director and Lauren Byrne Research Fellow at Huntington’s Disease Centre, UCL, Queen Square Institute of Neurology, London and Dr. Niall Pender, Enroll-HD study site Lead Investigator and Principal Clinical Neuropsychologist at Beaumont Hospital, Dublin.
Complementary tickets are available on request by emailing firstname.lastname@example.org reference Film Screening
Huntington's Disease: Hope For A New Decade, Saturday April 13th 2019
Videos of Speaker Presentations by Professor G. Bernhard Landwehrmeyer, Ulm University Hospital, Germany and Dr Tom Burke, Trinity college Dublin are available here
Support meetings are held regionally on a Saturday morning from 11am - 1pm. 2019 meetings include:
|Cork||Mar 23rd||July 27th||Oct 5th||Nov 30th|
|Dublin||Feb 2nd||May 4th||Aug 10th||Nov 2nd|
|Limerick||Jan 12th||Apr 13th||Oct 12th|
|Roscommon||June 8th||Sept 7th||Dec7th|
HD Awareness Week
Our 2019 HD Awareness week runs from 13th - 17th May.
#LightItUp4HD is one of our annual events with HDAI joining other international organisations to raise awareness for Huntington’s Disease.
Members Meeting and Respite Weekend
HDAI's annual Members Meeting and AGM takes place on June 8th at Cuisle Holiday Centre, Donammon Co. Roscommon as part of our annual respite weekend 7th-9th June. See Members Meeting for more information.