Huntington's Disease Association of Ireland (HDAI) exists to provide a unique service offering information, support and advocacy to those impacted by Huntingtons disease.
HDAI organisaton and structure
HDAI is a national voluntary organisation established by HD family members to provide consultation, information and individualised support to those diagnosed with Huntington’s Disease, those at risk, family members and health and social care professionals. Confidentiality is guaranteed. The Association was formally launched in 1985 and was incorporated in 1998. HDAI is registered as a charitable company limited by guarantee. It is consitiuted under a Memorandum and Articles of Association and is a Registered Charity CHY 10130. HDAI is also registered with the Charities Regulatory Authority (CRA) 20025656. HDAI's service is financed through statutory sector grants and the generosity of members and friends who fundraise and donate to the charity. HDAI employ an Information and Services Coordinator and a Family Support Officer (part time). HDAI is situated in Carmichael House, North Brunswick St., Dublin 7 and is a member group of the Carmichael Centre.
HDAI's directors are elected by the membership at each AGM. The directors work on a voluntary basis to oversee the work of the Association and are responsible for ensuring its good governance and its accountability to stakeholders. HDAI's Annual General Meeting takes place in June in Cuisle Respite Centre, Co. Roscommon. All members are invited to attend.
Michael D Higgins, President of Ireland has been patron of HDAI since his inauguration in 2011.