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Creating Awareness

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Today FM Feature on Rare Disease Day

  Radio interview on High Noon 28/02/2017 discusses impact of Rare Diseases and the need for improved services. Anne (left) outlines the impact of HD on her family.

Charles Sabine, HD advocate interviewed on USA TV Show The Doctors

Click here for interview

We Need Our Heads Examined

Neurological Alliance of Ireland led campaign to call on Government to address critical shortage of rehabilitation services.

  

HD Features on Nationwide RTE 1 TV and UTV Ireland News

            See Feature 05/03/2015

Anne and Christy interview in The Sun March 11th 2015 Click here

Medical Cards

  Longford Leader article May 19th , 2014

Joe and Friends climb Croagh Patrick on 24th May to raise awareness and funds for HDAI.

Holding None of The Cards Sunday Business Post July 21st by Susan Mitchell

  Person with HD is refused a discretionary medical card

Rare Disease Day 2013

      

Young people from HD families feature on Awareness video to highlight the impact of living with a Rare Disease.                                                                           Meeting Minister White at Rare Disorders without Borders event in Dublin on Feb 28th 2013 

 Rare Disorders Without Borders Outcome Report

 HD Article features in World of Irish Nursing WIN 

Click link above and choose Understanding Huntington's from menu on right  

Morning Show

Anne and Christy discuss their battle with HD on the Morning Show August 2012 Morning Show

 

Many of our members and friends host events and participate in activities throughout Ireland to raise awareness and funds for Huntington's Disease. This includes social nights, golfing sponsorships, line dancing, school events, charity swims and participating in organised events including Mini Marathons, Balla Walk, Dublin and Cork marathons. Such events often generate interest from local newspapers and radio stations and give people an insight into problems HD families face.

Primetime Investigates

Primetime Investigates 30th May 2011 featured the effects of health cuts on a number of peple waiting for treatment and care. Rosemary and Michael courageously told their story to help create awareness for HD. See Hope Newsletter Q2 11

Better Together

HDAI submitted a video for the Autumn 2010 Better Together competition -  A national awareness Campaign to create awareness and encourage community and voluntary activity. Thanks to all those who contributed.HDAI Better Together video

Woody Guthrie Tribute Night

Andy Irvine hosted a moving tribute to Woody Guthrie to mark the 40th anniversary of his death. We received nationwide public awareness when Derek Mooney’s RTE 1 radio show interviewed Andy Irvine on the day 3/10/2007. Andy gave a very interesting account of Woody’s life and sang some songs. He talked about Huntington’s Disease and mentioned the consequences for families living with HD. Catherine Paradise, our committee member, was also interviewed on the programme and discussed her father’s illness and her ‘at risk’ status before she received a favourable test result. Catherine also mentioned the work of HDAI.

RTÉ Radio One ‘Mind Matters’ wins award for |HD programme

Mind Matters is a science series that looks at conditions of the human brain, and its ability to function and recover after trauma. The second series of Mind Matters featured Huntington's Disease on March 6th 2007 at 8.30pm. Presenter and producer Ella McSweeney talked to Galway-born scientist Michael Conneally who helped to isolate the gene in 1993, Geneticist Professor Patrick Morrison who talked about environment and other genes possibly having an effect on the onset of HD. Geneticist Sarah Duke from the National Centre for Medical Genetics who spoke about the scientific aspect of the testing procedure. Dr Anthony Hannan an Australian scientist discussed his research work on exploring how genes and the environment interact in the brain at molecular and cellular levels. The programme also featured family members including the heart-rending story of a family who are affected by the condition.

This programme won the Speech Programming award in the Phonographic Performance Ireland (PPI) Radio Awards, on 19/10/2007. The awards, established by the PPI and the BCI (Broadcasting Commission of Ireland), celebrate the art and skill of radio production and programming. For more information see http://www.rte.ie/radio1/mindmatters/

You can subscribe to the series as a podcast - the feed is http://www.rte.ie/radio1/podcast/podcast_mindmatters.xml

Awareness Poster Campaign

Please Click Here

 

RTÉ Panel Discussion on Huntington's Disease

On Tuesday 22nd March 2006, RTÉ RADIO 1 hosted a panel discussion on Huntington's Disease which featured on Outside the Box, a programme for and about people with disability. Presented by Olan Mc Gowan, the programme also featured an interview with Rachel Sarah Murphy (Fair City).