An Enroll-HD site has now been established at Beaumont Hospital, Dublin. For further information see video above or email: email@example.com
Enroll-HD is a global longitudinal, observational study of Huntington’s disease which collects a common set of data for all participants across all sites around the world - www.enroll-hd.org
Enroll-HD aims to help the research community by:
- Providing clinical data and biologic samples to help better understand the human biology of HD
Determining what interventions work to improve the care of people with HD
Developing better, smarter clinical trials
Promoting the recruitment of clinical trial participants
Video Postcard from CHDI's 2016 Therapeutics Conference
There are numerous research studies being conducted throughout the world to find therapies that slow or prevent the progression of HD. Information is available on websites such as:
Huntington's Disease Research News. In Plain Language. Written by scientists. For the Global HD Community. Link to HDBuzz feed on YouTube
Dr Wild's Research Presentation, Dublin 2013
Aims to cure genetic illness by supporting basic biomedical research. The HDF was started by Dr. Milton Wexler in 1968 when his wife was diagnosed with Huntington's Disease.
IHA is a federation of national voluntary health agencies that share common concern for individuals with Huntington's Disease and their families.
HSC is a national network of volunteers and professionals united in the fight against HD since 1973
EHDN aims to provide a platform for professionals and people affected by HD and their relatives to facilitate working together throughout Europe
HSG is a non-profit group of clinical investigators from medical centers in the United States, Canada, Europe and Australia, experienced in the care of Huntington patients and dedicated to clinical research of Huntington disease. The primary focus of the HSG is to conduct clinical research trials, including both treatment (interventional) and observational studies.
Research in Ireland
UCC Researchers Focus on Gene Silencing Approaches for HD - Article in Hope 2015 by Prof. John Cryan