HDAI's Family Support Officer is available to talk to and meet family members in crisis.
See Events and News for support meeting dates.
HDAI can provide information and financial assistance for counselling.
Freefone Number for families in crisis 1800 393939
Regular support group meetings are held in Dublin, Cork, Limerick and Mayo/Roscommon.
Carers workshops are held in Dublin, Cork and Roscommon.
Young peoples activities are hosted by our Family Support Officer.
An annual information meeting and respite weekend is held in Co. Roscommon.
Publications including leaflets, booklets, and articles covering the many issues pertaining to HD are available on request including:
- Facing Huntingtons Disease: A Handbook for Family and Friends
- Understanding Behaviour
- Caregivers Handbook
- Physician’s Guide
Members receive quarterly newsletters and an annual edition of Hope Annual.
An assistance fund is available to members in need.
Loan of specialised seating and equipment enhances the quality of life of a person with HD.
HDAI meets with health care teams and give talks to interested personnel.
HD ID cards are provided to people with HD free of charge.
HDAI represents the views of HD families through International Huntington Association and European Huntington Association network.
HDAI represents views of HD families nationally through umbrella organisations