Huntingtons Disease Youth Organisation HYDO
HYDO is an International non-profit organisation set up specifically to provide support for young people around the world impacted by Huntington's Disease. Take a look HYDO
HDYO European Youth Camp August 7th - 13th Applications Open
Four places are available for young people impacted by HD who are living in Ireland aged between 18 -25 years. The camp offers young people the chance to meet others from accross Europe, to attend information workshops, to share experiences and take part in many fun activities. Click on the image below to see a video from a previous camp Further information and link to application form
HDAI Youth Support
HDAI recognise the need for young people from HD families to access peer support. Contact us if you want to meet up with other young people who are in the same situation as yourself or if you want to meet HDAI's Family Support Officer.
We host various fun activities such as sailing, horse riding, arts & crafts and we are open to hearing your suggestions, the more interesting the better.
All you have to do is let us know you are interested. We will cover the cost of the day out for you, so there is no excuse, come along and meet new friends.
Participants from Ireland have taken part in the 2010, 2012 and 2013 International HD Youth Camp. The camp is for young people who have HD in their family. HDANI hosted a youth camp in July 2014 and three young people from HDAI participated. Let us know if you are interested in putting your name forward to attend furure camps.
Contact us on 1800 393939.
What is Huntington's Disease: A Guide for Young People (8-14yrs) gives young people from HD families an explanation of HD and some tips to help them deal with problems relating to HD. You can download the booklet below or contact the office for a copy.