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Exercise and Physiotherapy

The European Huntington Association (EHA) and the European Huntington's Disease Network (EHDN) provide up to date information and guidelines on exercise and physiotherapy for people and families affected by Huntington's disease. 

Invitation to Physiotherapists to complete Research Study: Implementation of physiotherapy clinical practice guidelines 

Physiotherapy is important for treating people with Huntington’s Disease. To help physiotherapists, the European Huntington’s Disease Network Physiotherapy Working Group has put together and published Clinical Guidelines.

We are conducting a survey to determine how the working group can support physiotherapists’ implementation of the physical therapy clinical practice guidelines for Huntington’s disease that were published in January 2020. If you are a physiotherapist who has been/is working with people with HD and would like more information on the study, please click here for further information. If you would like to speak directly to someone about the study, please contact Una Jones jonesuf@cardiff.ac.uk
Una Jones, Chair of the EHDN Physiotherapy Working Group

The survey is an online questionnaire which will ask about factors that would help or hinder you in implementing the guidelines in practice. The questionnaire should take approximately 15 minutes to complete and is open until 12th February 2021 .  Survey Information   Online Questionnaire

 

Active Huntington's

Active Huntingtons is an information and learning resource developed in collaboration with physiotherapists in the EHDN Physiotherapy Working Group.

Research on physical activity has shown several benefits for people with Huntington’s disease:

  • Improved quality of life and confidence
  • Improved balance
  • Ability to walk further and faster
  • Prevention of  stress and aggression
  • Reduction in symptoms of depression and anxiety

Move to Exercise 

This exercise programme has been developed by physiotherapists specifically for people with movement disorders. You can use these tools to help a person living with Huntington’s disease to improve their fitness and balance. Please remember exercise is not without its risks and this or any other exercise programme has potential to cause injury. To reduce the risk of injury, consult your doctor or physiotherapist before beginning this exercise programme. Your physiotherapist should be able to help you identify which exercises will be most beneficial for you . The exercises presented here are in no way intended as a substitute for medical consultation; the authors and producers disclaim any liability from and in connection with this program. As with any exercise programme, if at any point during your work out you begin to feel faint, dizzy or have physical discomfort, you should stop immediately and seek medical advice.

Move to exercise DVD clip 1              Move to exercise Booklet
Move to exercise DVD clip 2

Move to Exercise Workbook has been developed by the ENGAGE-HD study team and the Cardiff Physiotherapy Group working in partnership with people with Huntington’s Disease, family members, carers and staff from the Huntington’s Disease Association of England and Wales.

The European Huntington's Disease Network are asking the HD Community to stay safe during the current pandemic and to remain active while at home: Exercise At Home

Physiotherapy Guidelines

The EHDN Physiotherapy Working Group provide Physiotherapy Clinical Guidelines (2013) to support physiotherapists working with people with Huntington’s disease.  

There is strong evidence to support physical therapy interventions to improve fitness, motor function, and gait in persons living with Huntington’s Disease: Clinical recommendations to guide physical therapy practice for Huntington disease (2020)