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Family Matters Survey

Huntington’s Disease Awareness Month is a time to raise awareness of Huntington’s with the wider public. We want to acknowledge the unique impact of Huntington’s disease, and to help people understand the challenges that families face. 

We want to hear from you! As part of Huntington’s disease awareness month in May, we are carrying out a community survey to understand the impacts of living with Huntington’s disease. This survey is open to you if you have direct experience of Huntington’s, whether you have a diagnosis or a gene positive test result, if you may be at risk, or if you care for a loved one with Huntington’s or have somebody in your family who has Huntington’s, even if you have tested negative yourself.

Responses to this survey are completely anonymous and it should only take 5 minutes to complete Survey