Film Screening and Q & A
HDAI together with Irish filmmakers Amanda Spencer and Brian Moore hosted a special screening of the inspirational documentary 'Dancing At The Vatican' on Thursday May 23rd at the Lighthouse Cinema, Dublin. The film is based on the May 2017 HDdennomore event and follows the journeys of some South American families who, despite isolation and poverty, travel to Rome to meet Pope Francis and to call for an end to the fear and stigma surrounding Huntington’s disease. The film comes at a time when the need to overcome fear and stigma has never been more important, as greater research participation is required for the potential therapies now emerging.
A Question and Answer session followed the screening facilitated by Mick Clifford, Irish Examiner journalist. Brian Moore (filmmaker), Dr. Ed Wild and Lauren Byrne (Huntington’s Disease Centre, UCL, London and Dr Niall Pender, Beaumont Hospital, Dublin spoke about their participation in the HDDennomore event and its significance for the HD community. Issues of concern for Irish families including access to clinical trials and potential therapies in the future were also discussed. The panel discussion is available here.