Governance
Objectives and Constitution
Huntington's Disease Association of Ireland (HDAI) was incorporated in 1998 and is registered as a charitable company; Registered Charity CHY 10130, Charities Regulatory Authority (CRA) 20025656.
HDAI is established is to promote purposes of benefit to people impacted by Huntington’s Disease (HD) in a manner that is exclusively charitable in accordance with Irish law, in particular to:
- exchange and disseminate information relating to Huntington's Disease;
- provide support for individuals, families and carers who are impacted by HD;
- co-operate with the medical, caring, social and scientific professions in the management of HD.
To view HDAI's Mission, Vision and Values Click here
To view HDAI’s Constitution Click here
Our Patron
Michael D Higgins, President of Ireland has been patron of HDAI since his inauguration in 2011.
Finance and Reporting
HDAI's service is financed through statutory sector grants and the generosity of members and friends who fundraise and donate to the charity. Audited financial statements are produced annually.
- HDAI Reports and Financial Statements 2023
- HDAI Reports and Financial Statements 2022
- HDAI Reports and Financial Statements 2021
- HDAI Reports and Financial Statements 2020
- HDAI Reports and Financial Statements 2019
- HDAI Reports and Financial Statements 2018
- HDAI Reports and Financial Statements 2017
- HDAI Reports and Financial Statements 2016
- HDAI Reports and financial Statements 2015
- HDAI Reports and Financial Statements 2014
- HDAI Reports and Financial Statements 2013
Policies
HDAI aims to provide information and support to people impacted by HD nationwide. It is our goal to ensure that the services we provide are of the best possible quality. HDAI welcome feedback from service users, carers, family members or health and social care professionals and the HD community about the services we provide. If our Information and Support service is not operating as well as it should, HDAI is committed to putting right any wrong.
HDAI has a No Tolerance approach to any form of abuse or harm towards children and vulnerable adults.
- HDAI Child Safeguarding Statement
- Child Safeguarding Policy
- Safeguarding Vulnerable Persons Protection Policy
- Safeguarding HSE Easy Read Leaflets
- Freedom of Information
Guidance on Fundraising
In order for HDAI to comply with the Charities Regulator Guidance for Charitable Organisations on Fundraising From The Public (launched September 2017) it is our duty to look after our fundraisers and donors.
We aim, with the help of you our fundraisers, to follow best practice and to operate in a transparent, effective and professional manner. Fundraising activities will not be unreasonably persistent, intrusive or place undue pressure on people to donate
HDAI adopted ‘The guiding principles for fundraising’ in 2015 and has committed to complying with the Guidelines for Charitable Organisations on Fundraising from the Public which were formally discussed and adopted at a Board meeting on 13 February 2020.
- HDAI Public Compliance Statement
- HDAI Commitment to Standards in Fundraising Practice
- HDAI Donor Charter
- HDAI Disclosure Statement
- HDAI Handling Fundraising Feedback and Complaints
Shared Interests
HDAI is a member of: The International Huntington Association and The European Huntington’s Association
National umbrella organisations include:
