Meetings and Events
The Huntington's Disease Youth Organisation (HDYO)’s Virtual International Young Adult Congress is taking place on March 13-14 2021.
See the Agenda and register at: https://hdyocongress2021.vfairs.com/
Mindfulness & Wellbeing
We are hosting a Mindfulness & Wellbeing Virtual event to celebrate Brain Awareness and Love Your Brain
Mallika J Lancaster an experienced and accredited psychotherapist who specialises in bodywork and healing will deliver the seminar which will be facilitated by Liz O'Sullivan, Family Support Officer.
This event is open to anyone impacted by Huntington's. To express your interest in attending please contact us by March 18th at email@example.com or call us directly
PLEASE NOTE - Due to Covid-19 Stay at Home restrictions HDAI Support Group Meetings will take place online until further notice. Please contact us at firstname.lastname@example.org if you are interested in joining an online chat
Support group meetings allow people impacted by HD to avail of peer support and share information with others who may have a similar experience to you. You will have an opportunity to speak with people who understand your situation because of their own experience. Meeting with other HD families can be an effective way of sharing coping strategies and useful tips. They also offer an opportunity to build friendships with other carers. Family care givers are also encouraged to look after their own health and wellbeing.
Support meetings are held regionally on a Saturday morning from 11am - 1pm. 2021 meetings include:
- Cork: March 27th, July 24th, October 9th, November 27th
- Dublin: February 6th, May 8th, August 7th, November 6th
- Limerick: January 16th April 10th October 24th
- Roscommon: Feb 20th TBC September 4th December 4th
Dates are subject to change. Contact HDAI for confirmation and location.
Huntington's Disease: Hope For A New Decade Saturday April 13th 2019
The British Neuroscience Association - in partnership with Neuroscience Ireland (NI) and the British Society for Neuroendocrinology (BSN) - hosted the 2019 international Festival of Neuroscience in Dublin. HDAI hosted an event Huntington's Disease Hope For A New Decade as part of the public festival of events .
Presentations by Professor Bernhard Landwehrmeyer and Dr Tom Burke are available here:
HDAI and HDANI Joint Conference September 2018
Day 1 Information and workshops for health and social care professionals
Day 2 HD Family Conference. Presentations from Conference speakers are available online.
- Dr. David Craufurd, University of Manchester, Centre for Genomic Medicine: Treatment for HD: where we are now, and where we might be going
- Dr. Niall Pender, Principal Clinical Neuropsychologist Beaumont Hospital, Dublin Coping with the emotional and cognitive challenges of HD
- Lauren Byrne, Research Fellow and PhD student at UCL Institute of Neurology in London Fighting Public Enemies #1 1nd #2
- Professor Asa Petersén, Professor of Neuroscience and Senior Consultant in Psychiatry, Lund University, Sweden Research on non-motor aspects of Huntington disease
HD : The Future March 2017
- Dr Ed Wild : Update on Huntington’s Disease Research
- Professor Orla Hardiman : The Importance of Clinical Trials in Rare Neurological Diseases
- Dr Niall Pender : Understanding Thinking and Behaviour Changes in HD: An Update