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Meetings and Events

Support Meetings

Support group meetings allow people impacted by HD to avail of peer support and share information with others who may have a similar experience to you. You will have an opportunity to speak with people who understand your situation because of their own experience. Meeting with other HD families can be an effective way of sharing coping strategies and useful tips and offer an opportunity to build friendships. Family care givers are encouraged to look after their own health and wellbeing.

Support meetings are held regionally on a Saturday morning from 11am - 1pm. 2024 meetings include:

  • Cork:                  Mar.    23rd        July 20th            Oct. 5th,          Nov. 30th
  • Dublin:               Feb.    10th         May 4th               Aug. 10th,       Nov. 9th
  • Limerick:            Jan.     20th         April 13th            
  • Roscommon:      Feb.    24th            Sept.  7th         Dec. 7th
  • May 25th Annual Member Mtg and Carers Workshop (Galway) 

Meetings are subject to change. Please contact us at info@huntingtons.ie if you are interested in attending.

Members Meeting

HDAI’s 2023 Members Meeting  took place on Saturday 20th May  at the Shearwater Hotel in Ballinasloe, Co Galway. 

Guest speakers included Cathy Coughlan, Senior Speech & Language Therapist, HSE Cork Kerry Community Healthcare, Dr Tom Burke, Senior Clinical Neuropsychologist,  Dr Ian Daly Clinical Director, and Dr Kieran O’Driscoll, Consultant Psychiatrist, Bloomfield Hospital.

The Hope Q2 2023 Newsletter provides a report on the meeting.

2022 Meeting

Minister Anne Rabbitte met family members at our 2022 Members Meeting in Ballinasloe and spoke about her commitment to improve services for families affected by Huntington's Disease. 

Minister Rabbitte, (centre) meeting family members and Liz O'Sullivan, HDAI (right) at the Shearwater Hotel, Ballinasloe 24/09/22. Copyright Andrew Downes

Keynote Speaker

Colm Peelo, PhD Researcher in Clinical Medicine at Trinity College Dublin and Beaumont Hospital gave a talk on Neuropsychology in Huntington's Disease

Colm completed a Masters in Clinical Neuroscience at University College London where he did a project with Professor Ed Wild, looking at biomarkers in HD. Colm now works with Prof. Orla Hardiman and Prof. Niall Pender's teams in Trinity College and Beaumont Hospital. He is currently examining how changes in the brain due to Huntington’s disease and Motor Neurone Disease affect people’s cognition and behaviour.

Please contact us on info@huntingtons.ie for further information.

Family Voices Webinar Series

The Huntington's Disease UK and Ireland Alliance is hosting a series of lived experiences, 'Family Voices'. Family members from across the Huntington’s disease community will share their experience. Most webinars have been recorded and are available online.

HDYO Congress

The Huntington's Disease Youth Organisation (HDYO) are holding the FIRST IN-PERSON HDYO International Young Adult Congress on March 17-19, 2023! To register or stay tuned to more details, visit HDYOCongress.Org.
 

 

Previous Seminars

Meet the HD Researchers

The Huntington’s Disease Research Group at Trinity College Dublin and Beaumont Hospital, in collaboration with the Huntington's Disease Association of Ireland hosted an online Webinar 'Meet the HD Researchers' on May 31st 2021 to share information about their work.  

This webinar provides an overview of the exciting research in Huntington's Disease that is happening in Ireland right now! Hear about the work of  Professor Niall Pender, Professor Orla Hardiman and their HD research team here Meet the HD Researchers

Huntington's Disease: Hope For A New Decade  Saturday April 13th 2019

The British Neuroscience Association - in partnership with Neuroscience Ireland (NI) and the British Society for Neuroendocrinology (BSN) - hosted the 2019 international Festival of Neuroscience in Dublin. HDAI hosted an event  Huntington's Disease Hope For A New Decade as part of the public festival of events .

Presentations by Professor Bernhard Landwehrmeyer and Dr Tom Burke are available here:

Mindfulness & Wellbeing

HDAI hosted Mindfulness & Wellbeing Virtual workshops to mark Brain Awareness (March) and Huntington's Awareness Month (May) in 2021. 

See page 32 of Hope Annual 2021 for Mindfulness tips.

 

HDAI and HDANI Joint Conference September 2018

Day 1 Information and workshops for health and social care professionals

Day 2 HD Family Conference. Presentations from Conference speakers are available online.

 

HD : The Future  March 2017