Meetings and Events
Support group meetings allow people impacted by HD to avail of peer support and share information with others who may have a similar experience to you. You will have an opportunity to speak with people who understand your situation because of their own experience. Meeting with other HD families can be an effective way of sharing coping strategies and useful tips. They also offer an opportunity to build friendships with others in the HD community. Family care givers are encouraged to look after their own health and wellbeing.
Support meetings are held online / regionally on a Saturday morning from 11am - 1pm. 2022 meetings include:
- ONLINE January 15th February 5th April 9th
- Cork: March 26th, July 23rd, October 8th, November 26th
- Dublin: February 6th, May 7th, August 6th, November 5th
- Limerick: January 16th April 9th (online) October 22nd
- Roscommon: June 11th September 3rd December 3rd
Meetings are subject to change. Please contact us at firstname.lastname@example.org if you are interested in attending.
HDAI’s 2022 Members Meeting & AGM will take place on Saturday 24th September at the Shearwater Hotel in Ballinasloe, Co Galway. Rooms for an overnight stay on 24th September are limited so if you have not already booked please let us know as soon as possible if you wish to stay. Attendance on the day is free of charge but you must reserve your place in advance. Please contact us on email@example.com for further information.
The Huntington's Disease Youth Organisation (HDYO) are holding the FIRST IN-PERSON HDYO International Young Adult Congress on March 17-19, 2023! To register or stay tuned to more details, visit HDYOCongress.Org.
Mindfulness & Wellbeing
HDAI hosted Mindfulness & Wellbeing Virtual workshops to mark Brain Awareness (March) and Huntington's Awareness Month (May) in 2021.
See page 32 of Hope Annual 2021 for Mindfulness tips.
Meet the HD Researchers
The Huntington’s Disease Research Group at Trinity College Dublin and Beaumont Hospital, in collaboration with the Huntington's Disease Association of Ireland hosted an online Webinar 'Meet the HD Researchers' on May 31st 2021 to share information about their work.
This webinar provides an overview of the exciting research in Huntington's Disease that is happening in Ireland right now! Hear about the work of Professor Niall Pender, Professor Orla Hardiman and their HD research team here Meet the HD Researchers
Huntington's Disease: Hope For A New Decade Saturday April 13th 2019
The British Neuroscience Association - in partnership with Neuroscience Ireland (NI) and the British Society for Neuroendocrinology (BSN) - hosted the 2019 international Festival of Neuroscience in Dublin. HDAI hosted an event Huntington's Disease Hope For A New Decade as part of the public festival of events .
Presentations by Professor Bernhard Landwehrmeyer and Dr Tom Burke are available here:
HDAI and HDANI Joint Conference September 2018
Day 1 Information and workshops for health and social care professionals
Day 2 HD Family Conference. Presentations from Conference speakers are available online.
- Dr. David Craufurd, University of Manchester, Centre for Genomic Medicine: Treatment for HD: where we are now, and where we might be going
- Dr. Niall Pender, Principal Clinical Neuropsychologist Beaumont Hospital, Dublin Coping with the emotional and cognitive challenges of HD
- Lauren Byrne, Research Fellow and PhD student at UCL Institute of Neurology in London Fighting Public Enemies #1 1nd #2
- Professor Asa Petersén, Professor of Neuroscience and Senior Consultant in Psychiatry, Lund University, Sweden Research on non-motor aspects of Huntington disease
HD : The Future March 2017
- Dr Ed Wild : Update on Huntington’s Disease Research
- Professor Orla Hardiman : The Importance of Clinical Trials in Rare Neurological Diseases
- Dr Niall Pender : Understanding Thinking and Behaviour Changes in HD: An Update