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Meetings and Events

Meet the HD Researchers

The Huntington’s Disease Research Group at Trinity College Dublin and Beaumont Hospital, in collaboration with the Huntington's Disease Association of Ireland will host an online Webinar 'Meet the HD Researchers' on May 31st to share information about their work.  

This event will give an overview of the exciting research in Huntington's Disease that is happening in Ireland right now! This is a great opportunity to hear from Professor Niall Pender, Professor Orla Hardiman and other members who have recently joined the HD team.

Register here

Mindfulness & Wellbeing

We are hosting a Mindfulness & Wellbeing Virtual event to celebrate Huntington's Awareness Month May 22nd. 

To express your interest in attending please contact us by May 21st at info@huntingtons.ie or call us directly

HDYO Congress

The Huntington's Disease Youth Organisation (HDYO)’s Virtual International Young Adult Congress is taking place on March 13-14 2021.

See the Agenda and register at: https://hdyocongress2021.vfairs.com/

Mindfulness & Wellbeing

We are hosting a Mindfulness & Wellbeing Virtual event to celebrate Brain Awareness and  Love Your Brain

Mallika J Lancaster an experienced and accredited psychotherapist who specialises in bodywork and healing will deliver the seminar which will be facilitated by Liz O'Sullivan, Family Support Officer.

This event is open to anyone impacted by Huntington's. To express your interest in attending please contact us by March 18th at info@huntingtons.ie or call us directly

Support Meetings

PLEASE NOTE  - Due to Covid-19 Stay at Home restrictions HDAI Support Group Meetings will take place online until further notice. Please contact us at info@huntingtons.ie if you are interested in joining an online chat

Support group meetings allow people impacted by HD to avail of peer support and share information with others who may have a similar experience to you. You will have an opportunity to speak with people who understand your situation because of their own experience. Meeting with other HD families can be an effective way of sharing coping strategies and useful tips. They also offer an opportunity to build friendships with other carers. Family care givers are also encouraged to look after their own health and wellbeing.

Support meetings are held regionally on a Saturday morning from 11am - 1pm. 2021 meetings include:

  • Cork:                  March 27th,           July 24th,             October 9th,     November 27th
  • Dublin:               February 6th,         May 8th,              August 7th,        November 6th
  • Limerick:           January 16th          April 10th             October 24th
  • Roscommon:       Feb 20th                 TBC                   September  4th     December 4th

Dates are subject to change. Contact HDAI for confirmation and location.

 

Seminars

Previous Seminars

Huntington's Disease: Hope For A New Decade Saturday April 13th 2019

The British Neuroscience Association - in partnership with Neuroscience Ireland (NI) and the British Society for Neuroendocrinology (BSN) - hosted the 2019 international Festival of Neuroscience in Dublin. HDAI hosted an event  Huntington's Disease Hope For A New Decade as part of the public festival of events .

Presentations by Professor Bernhard Landwehrmeyer and Dr Tom Burke are available here:

 

HDAI and HDANI Joint Conference September 2018

Day 1 Information and workshops for health and social care professionals

Day 2 HD Family Conference. Presentations from Conference speakers are available online.

 

HD : The Future  March 2017