National Rare Disease Plan for Ireland 2014-2018
The National Rare Disease Plan for Ireland 2014-2018 was launched on 3rd July 2014. Minister Reilly thanked patient groups for their contribution to the Rare Disease Taskforce and said the patients themselves must be at the centre of the new policy.
“At the very centre of the research, the planning and decision making, is the patient. People living with a rare disease and their families, especially parents of young children, are often the leading experts in their diseases.”