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Privacy Policy

Last updated: March 2022

This website is operated by Huntington’s Disease Association of Ireland (HDAI), a charity established in Ireland with a registered address of Carmichael House, 4 North Brunswick Street, Dublin 7, D07 RHA8, Ireland.

HDAI is registered with the Charities Regulatory Authority (CRA), Number 20025656.  Charity number CHY10130 and Company number 290191.

HDAI is dedicated to protecting the confidentiality and privacy of information it is entrusted with, and we take the utmost care to ensure that the personal information we obtain from you is not used in a way that you are unaware of or are not agreeable to. This Privacy Notice outlines your rights, what information we may collect about you generally and also though the website, and how we use this information.

If you have any questions about this Privacy Notice, please email us at

Information we collect

  • Personal Data – this includes any information that identifies you, for example, your name, address, contact details, age, location, gender. This information will be collected if you submit it to us yourself, or where you have consented to a Third-Party contacting us on your behalf.

  • Non-identifiable Personal Data – this information is collected from visitors to our website, through cookies (small files that transfer to your computer’s hard drive when you browse a website), and may include your IP address, the pages you visited, the browser you use, for example. This information is not stored by us in relation to the service we provide to you, but can be used in the short term for statistical purposes.  For more information on cookies see our Website Information section

What are your rights?

If at any point you believe the information we process on you is incorrect you can request to see this information and even have it corrected or deleted. If you wish to raise a complaint on how we have handled your personal data, you can contact us on the matter.

If you are not satisfied with our response or believe we are processing your personal data not in accordance with the law, you can complain to the national Data Protection Commissioner’s Office.

A full list of your rights under GDPR is as follows:

  • The right to access the personal data we hold on you
  • The right to correct and update the personal data we hold on you
  • The right to have your personal data erased
  • The right to object to processing of your personal data
  • The right to data portability
  • The right to withdraw your consent to the processing at any time for any processing of personal data to which consent was sought
  • The right to object to the processing of personal data where applicable
  • The right to lodge a complaint with the national Data Protection Commissioner’s Office


Website Information Collection And Use

Huntington's Disease Association of Ireland ("us", "we", or "our") operates (the "Site"). This page informs the visitor/user ("you", "your") of our policies regarding the collection, use and disclosure of Personal Information we receive from users of the Site.

We use your Personal Information for providing and improving the Site, and for direct contact between yourselves and us in the case of the use of the webform on the webpage. By using the Site, you agree to the collection and use of information in accordance with this policy.

While using our Site, we may ask you to provide us with certain personally identifiable information that can be used to contact or identify you. Personally identifiable information may include, but is not limited to your email address (required when using the contact webform), name and telephone number (both optional, and may be omitted). This information is not shared with 3rd parties, and will be treated as confidential. Should a situation arise where sharing of any personal/contact information is deemed necessary/desirable by us, your explicit permission to do so will be required prior to any action.

Log Data

Like many site operators, we collect information that your browser sends whenever you visit our Site ("Log Data").

This Log Data may include information such as your computer's Internet Protocol ("IP") address, browser type, browser version, the pages of our Site that you visit, the time and date of your visit, the time spent on those pages and other statistics.

In addition, we may use third party services such as Google Analytics that collect, monitor and analyze. Further information on what data is tracked can be found under "Cookies", further down.


At present, the Site does not contact visitors with promotional, marketing or newsletter related material. Any contact from us will be in direct response to a query first-initiated by you. eg by using the contact form on the webpage


Cookies are files with small amount of data, which may include an anonymous unique identifier. Cookies are sent to your browser from a web site and stored on your computer's hard drive.

Like many sites, we use "cookies" to collect information. You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent. However, if you do not accept cookies, you may not be able to use some portions of our Site. See below for how to manage your browser cookies:

Specific Cookie List:


These cookies are set by the Google Analytics service which enables website owners to track visitor behaviour and measure site performance. They are used to calculate new and returning visitor statistics, determine session times and resets, throttle request rates, determine the source of visiting traffic and facilitate content sharing across credible social media platforms.


These cookies are set by the Site to remember explicit visitor choices regarding small style changes to how the Site is displayed; namely webpage background colour and font sizes.

This cookie is connected with server resource-allocation and session security.

This cookie is used to denote the visitor has read, acknowledged and agreed to the Site's Privacy Policy and will not be asked to reconfirm same until the cookie expires.

Please Note: No personal/sensitive or financial details are stored in cookies.

You can also opt out of Google Analytics by using this browser plugin.


The security of your Personal Information is important to us, but remember that no method of transmission over the Internet, or method of electronic storage, is 100% secure. While we strive to use commercially acceptable means to protect your Personal Information, we cannot guarantee its absolute security.

This Site has a valid SSL certificate, which enforces use of the https protocol on all Site webpages.

Changes To This Privacy Policy

This Privacy Policy is effective as of March 2020 and will remain in effect except with respect to any changes in its provisions in the future, which will be in effect immediately after being posted on this page.

We reserve the right to update or change our Privacy Policy at any time and you should check this Privacy Policy periodically. Your continued use of the Service after we post any modifications to the Privacy Policy on this page will constitute your acknowledgment of the modifications and your consent to abide and be bound by the modified Privacy Policy.

Contact Us

If you have any questions about this Privacy Policy, please contact us.


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