Beaumont Research Study
Prof. Niall Pender and his HD research team in Beaumont Hospital are currently beginning a new research study to investigate the cognitive and behavioural changes that take place in Huntington’s Disease over time. HDAI have committed €20,000 over two years to contribute to this valuable study in order to highlight the burden associated with management of cognitive and behavioural changes in patients and to recommend interventions to reduce this burden.
Individuals who are part of a HD family are eligible to participate in this study. Like Enroll-HD, if you have a diagnosis of HD, are at risk of the HD gene, have tested negative for the HD gene, or are a spouse of someone with HD you are welcome to take part. Participants will be asked to complete thinking and memory tests and some psychological questionnaires for research purposes. If you are interested in contributing to this research email Donal Campbell, Beaumont Hospital on firstname.lastname@example.org. Updated January 2020.
European Trial Finder
The European HD Association now have a Trial Finder website which shows trial sites all over Europe - https://hdtrialfinder.net/trial-finder/