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Upcoming Events

 

Support Meetings

Our Limerick Support meeting is on Saturday 18th August.

Support meetings are held regionally on a Saturday morning from 11am - 1pm. 2020 meetings include:

Cork Mar 28th July 25th Oct 10th Nov 28th
Dublin Feb 8th May 2nd Aug 8th Nov 7th
Limerick Jan 18th Apr 11th Oct 24th  
Roscommon  Feb 22nd   TBC Sept 5th Dec 5th

Sun Rise Up Croagh Patrick

 #Sunriseupcroaghpatrick  takes place on 27th June 2020 at Croagh Patrick, Westport, Co Mayo.  This is an annual fun walk or climb to raise funds for charities supporting people affected by neurological diseases including: Huntington's Disease, Parkinson's Disease and Motor Neurone Disease. Participants can opt to climb the mountain or walk beneath it. To register for the 2020 event and see highlights of previous years please visit www.sunriseupcroaghpatrick.com. To support Huntington's Disease climbers see iDonate.

Joe Doran's Awareness Walk

Joe Doran’s HD Awareness Walk takes place on Saturday 11th July 2020 at Lough Key Forest Park, Boyle, Co Roscommon. Last year's walk was featured in the Hope Q3 2019 newsletter. We hope you can join us at Lough Key Forest Park on July 11th!

Toonagh Walk

The Annual Toonagh Charity Walk takes place on Sunday 12th January, the walk starts from Toonagh Hall, Toonagh Village Co Clare at 11am. There are three distances to choose from 2km, 6km and 10km. All fitness levels welcome. There will be a Raffle, Refreshments and Treats afterwards.

Film Screening

HDAI together with Irish filmmakers Amanda Spencer and Brian Moore hosted a special screening of Dancing At The Vatican on Thursday May 23rd at the Lighthouse Cinema, Dublin. Following the screening, a Q&A expert panel including:  Dr. Ed Wild Associate Director and Lauren Byrne Research Fellow at Huntington’s Disease Centre, UCL,  Queen Square Institute of Neurology, London and Dr. Niall Pender, Enroll-HD study site Lead Investigator and Principal Clinical Neuropsychologist at Beaumont Hospital, Dublin and Brian Moore, Filmmaker discussed the film and the HDdennomore event.

 

BNA 2019

Huntington's Disease: Hope For A New Decade,  Saturday April 13th 2019

Videos of Speaker Presentations by Professor G. Bernhard Landwehrmeyer, Ulm University Hospital, Germany and Dr Tom Burke, Trinity college Dublin are available here

 

HD Awareness Week

Our 2019 HD Awareness week runs from 13th - 17th May.

#LightItUp4HD is one of our annual events with HDAI joining other international organisations to raise awareness for Huntington’s Disease.

 

Members Meeting and Respite Weekend

HDAI's 2019 annual Members Meeting and AGM takes place on June 8th at Cuisle Holiday Centre, Donammon Co. Roscommon as part of our annual respite weekend 7th-9th June. See Members Meeting for more information.

Dec7th