Fundraise
Fundraising is a crucial source of income in assisting us with the services and supports we provide to individuals and families affected by Huntington's disease. We greatly appreciate the support of our wonderful volunteers who raise funds and awareness.
iDonate is an online platform assisting charities and non-profits with fundraising. Volunteers can set up their own fundraising page online (click Start Fundraising on the Menu options) or you can call us for information. Active Huntington's Disease fundraising pages are available to view here.
With the help of dedicated volunteers we support events throughout Ireland including:
A HD Awareness walk In Memory of Joe Doran takes place on 19th July 2025 at Lough Key Forest and Activity Park, Boyle, Co Roscommon. Joe died in December 2024 . Over the last decade Joe and his family held an annual awareness walk and helped raise a phenomenal €88,000 to support families impacted by Huntington's disease. In Memory Joe Doran Huntington's Walk 19 July 2025
Mini Marathon – Each year wonderful women take part on behalf of HDAI. In 2024: Aisling, Lisa and Marie; Josie and Sinead, Shauna and Rohanna and Stephanie, Dave, Warren and Erica supported HDAI in the Dublin Mini Marathon.
Reports and photos from previous fundraising events are featured in our Newsletters
Fundraising Ideas
If you would like to raise funds but aren't sure how to start, here are some ideas from our wonderful voluntary fundraisers…
- Ann and friends organised a Charity Tea Dance.
- Nuala, Dawn and friends held a Bingo night and pub quiz
- Numerous volunteers raise funds through sponsorship for marathons, walks and cycles
- Íde and Máire hold a ‘Handknits for Huntington's Disease’ stall at an annual Craft Fair.
- Ann, Angelina, Bernie, Deirdre, Mary, Mark and many others sell HDAI Christmas cards.
- Martina and friends hold a casual day at work
- Ann, Frances, Michelle and others have held coffee mornings and cake sales at their places of work
Previous events included:
Mizen to Malin Cycle for HD - April 28th 2023 - see report
The Annual Toonagh Walk, Toonagh Co Clare in January Annual Toonagh Charity Walk
Huntington's Disease Remembrance Walk, Phoenix Park April 30th, 2022 see report on page 3.
Sun Rise For Brain Conditions
If you have any ideas or want to take part in a sponsorship event contact us at info@huntingtons.ie
Corporate Giving
Does your workplace have a corporate social responsibility program? Some HDAI fundraisers have sought matched funding from their employers and by doing so they have doubled their sponsorship raised from activities including company Bake Offs, Coffee mornings and Fun Runs. HDAI is registered on Benevity and Your Cause platforms.
Perhaps your company might consider matching sponsorship or including HDAI in their Charity of the Year nominations. Please contact HDAI on 01 872 1303, or email at info@huntingtons.ie to discuss further.
Governance
HDAI’s Annual Financial Statement and Activity Reports are available here . HDAI has formally committed to complying with the Statement of Guiding Principles for Fundraising.
Statement of Guiding Principles for fundraising
In order for HDAI to comply with the Charities Regulator Guidance for Charitable Organisations on Fundraising From The Public (launched September 2017) it is our duty to look after our fundraisers and donors.
We aim, with the help of you our fundraisers, to follow best practice and to operate in a transparent, effective and professional manner. Fundraising activities will not be unreasonably persistent, intrusive or place undue pressure on people to donate
HDAI adopted ‘The guiding principles for fundraising’ in 2015 and has committed to complying with the Guidelines for Charitable Organisations on Fundraising from the Public which were formally discussed and adopted at a Board meeting on 13 February 2020.