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Contribute to our ‘living history’ project for Huntington’s Disease Awareness Month!

GENERATION-HD1 Trial Halted

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HD Family Matters

Light Up for Huntingtons Disease 2021

About Family Matters

Meet the HD Researchers May 31st Webinar

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EHDN 2021 Virtual Meeting

Juvenile onset Huntingtons disease Global Registry

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Patients Deserve Better

HealthE-RND Research Study

EHA Support and Care Survey

Brain Awareness Week

Leinster House Awareness

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Family Voices Webinar Series

Postcard from Palm Springs 2022

Decision Support Service Commences

Neuropsychology in HD Colm Peelo 2022

Minister Rabbitte Meets Families Impacted by HD

As children we grew up watching our Dad help care for Mum and just a few years later he had to start over with my older brother.

HD Research Study Galway

SURVEY Irish HD Affected Families Experience of Services

EHA Webinar Prilenia filing for EMA approval for Pridopidine March 2024

HD Research Day May 9

Talks on Rare Diseases at South Dublin Libraries

Two Nurse Specialist Posts for Huntingtons Disease

Charles Sabine OBE TEDx Talk

HD Awareness Walk

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First Specialist HD Nurse Recruited

McMackin Lab Huntingtons Disease Study

Members Meeting 24 May 2025

Rare Disease Day 2025

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Address to Joint Oireachtas Committee 29 May 2024

National Rare Disease Strategy Public Consultation for Patients Families Caregivers

Volunteers Needed for HD Research Study

EHDN and ENROLL-HD 2024

2024 Election Asks

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Holiday Draw

The Present: A Documentary About Adventure and Huntington's Disease

Brain Awareness 2025

Campaign for Community Neurorehabilitation Teams

Huntington's Disease feature on Newstalk

HD Cafe At Bloomfield Hospital 16 April

Family Voices Webinar When Bob Dylan Met Woody Guthrie

HD Academy New Learning Resource

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