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We're here to support you


The Huntington's Disease Association of Ireland (HDAI) is a national voluntary organisation providing information, support and advocacy to people impacted by Huntington's Disease. Information and training is also available to those who work with people affected by the condition.

Services include:

  • A national helpline for people with HD, people at risk, carers and family members
  • A Family Support Officer available to talk to and meet family members on request
  • Access to counselling
  • Support Group meetings, information events and carers workshops
  • An annual information meeting and respite weekend
  • HD Specific publications - see Information including           Facing Huntington's Disease : A Handbook for Families and Friends
  •  Quarterly newsletters and an annual magazine Hope Annual
  • An assistance fund available to families in need
  • Loan of specialised seating and equipment
  • Information seminars for health and social care professionals
  • HDAI represents the views of HD families internationally through organisations including the European Huntington Association and the International Huntington's Association and nationally through relevant umbrella organisations

Current Hope Newsletter

Hope Issue 74

Freefone Number

Freefone Number for families in crisis 1800 393939

Support Groups

Regular support group meetings are held in Dublin, Cork, Limerick and Mayo / Roscommon. 

Carers Workshops

Carers workshops are held in Dublin, Cork and Roscommon.